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Listen to the Disabled In Action Singers audio of In Motion album online

Message # 55
Consumer awareness
Posted by: Anthony Trocchia

Link of this resource:

Message # 54
Cancer resources
Posted by: Anthony Trocchia

The Leukemia & Lymphoma Society

The Cancer Care Co-payment Assistance Foundation

The HealthWell Foundation

Prostate Cancer Foundation

Link of this resource:

Message # 53
Palliative care
Posted by: Anthony Trocchia

Link of this resource:

Message # 52
New Resource for Travelers with Disabilities
Posted by: Anthony Trocchia

The Transportation Security Administration (TSA) announces the launch of TSA Cares, a new helpline number designed to assist travelers with disabilities and medical conditions prior to getting to the airport. Travelers may call TSA Cares toll-free at 1-855-787-2227 prior to traveling with questions about screening policies, procedures, and what to expect at the security checkpoint.

Link of this resource:

Message # 51
Lung disorders
Posted by: Anthony Trocchia

Lung HelpLine

Mesothelioma Symptoms

Malignant Mesothelioma

Cystic Fibrosis Foundation

Mesothelioma Center

Link of this resource:

Message # 50
Skin problems
Posted by: Anthony Trocchia

National Psoriasis Foundation

American Academy of Dermatology

National Institute of Arthritis and Musculoskeletal and Skin Diseases

National Eczema Association

Link of this resource:

Message # 49
Alzheimer's Resources
Posted by: Anthony Trocchia

Alzheimer's Association
A non-profit advocacy group that educates and offers support for patients as well as funds research.

National Institute on Aging
Part of the NIH, NIA provides information about Alzheimer's, updates on the latest research, and instructions for joining clinical trials.

Alzheimer's Disease Neuroimaging Initiative
A 5-year study of how brain scans can detect Alzheimer's sooner, funded by both public (NIH) and private (pharmaceutical companies) resources.

Link of this resource:

Message # 48
Find out if your medications are safe
Posted by: Anthony Trocchia
The Postmarketing Drug Safety Evaluations site gives information about what the FDA has learned 18 months after a drug is approved or after 10,000 patients have used it, whichever comes later.
Click on Drugs > Drug Safety and Availability > Index to Drug-Specific Information.

Taken from Bottom Line Personal, Volume 31 Number 18.

Link of this resource:

Message # 47
Preventing HIV -- after exposure
Posted by: Anthony Trocchia

Too many people are unaware of PEP—post-exposure prophylaxis—and its potential to prevent HIV. If started within 72 hours of exposure (and the sooner the better), a 28-day course of HIV medications might halt HIV infection.

The web site raises PEP's profile. It explains whether PEP might be appropriate in a given circumstance, and it helps New Yorkers get PEP ASAP.

Not a New Yorker? The site's information can help you know what to say when you go to a local doctor or emergency room seeking PEP.

Providers can get PEP training by visiting, or call the hotline for docs: 888-448-4911.

Link of this resource:

Message # 46
Tardive Dyskinesia
Posted by: Anthony Trocchia

Link of this resource:

Message # 45
Supplements safety
Posted by: Anthony Trocchia

Find out the recommended safe dosages of supplements by visiting the Institute of Medicine web site at and searching for "recommended dietary allowance."

Link of this resource:

Message # 44
Help with Social Security matters
Posted by: Anthony Trocchia

National Association of Disability Representatives

National Organization of Social Security Claimants' Representatives

Social Security Secrets

Link of this resource:

Message # 43
Report Medicare and Medicaid fraud
Posted by: Anthony Trocchia

Service providers are the biggest perpetrators of Medicare and Medicaid fraud, often billing for goods or services not provided.

The feds have set up a website where you can report Medicare and Medicaid fraud.

Link of this resource:

Message # 42
ADA legal help
Posted by: Anthony Trocchia

Edward A. Kopelson has been an attorney for 35 years and quadriplegic for 27 years. He has specialized in disability discrimination law, representing disability organizations and people with disabilities in New York & New Jersey, ever since his spinal cord injury in 1982.

The law firm of James E. Bahamonde is committed to the equality of persons with disabilities and their inclusion in society. Mr. Bahamonde is a paralyzed, Marine Corps veteran who specializes in housing and disability discrimination. He has assisted hundreds of individuals throughout the five counties of New York City, and Westchester, Nassau and Suffolk counties. Feel free to contact him regarding any questions of discrimination.

Link of this resource:

Message # 41
Senior concerns
Posted by: Anthony Trocchia

Senior Living

Home Care Services


Assisted Living

U.S. Administration on Aging

National Association of Professional Geriatric Care Managers

Aging Care

The National Association of Area Agencies on Aging

What's an ADRC?

ADRC stands for Aging and Disability Resource Center. Each national region is supposed to have one. They're all funded by the federal government, and they're the newest twist on the old one-stop-shop idea. If you need any type of personal assistance service, you ought to be connected to whatever is in your area by contacting an ADRC first. From there, being plugged into whatever you're eligible for ought to be seanless and easy. No more being sent on wild goose chases, theoretically. Find the one closest to you at

Assisted Living Info

Link of this resource:

Message # 40
Posted by: Anthony Trocchia

The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) brings together the academic community and the autistic community to develop and conduct research relevant to the needs of autistic adults and people with disabilities. The partnership adheres to the principles of Community Based Participatory Research (CBPR), whereby researchers and community members serve as equal partners throughout the research process.

AASPIRE has recently launched the Gateway Project, which is an Internet-based research portal committed to inclusion, respect, accessibility, and relevance to the community. The Gateway offers access to online research studies on topics such as healthcare access and quality, online sense of community and identity, and problem-solving. The research studies are open to individuals on the autistic spectrum, as well as non-autistic individuals with and without disabilities.

If you would like to learn more about participating in the Gateway Project or any of its research studies, visit

Link of this resource:

Message # 39
Help yourself
Posted by: Anthony Trocchia

National Mental Health Consumers' Self-Help Clearinghouse

Link of this resource:

Message # 38
Renter resources
Posted by: Anthony Trocchia

Federal Home Loan Mortgage Corporation ("Freddie Mac")

News about their current policies dealing with evictions of renters related to foreclosures.

National Housing Institute
Referrals to local tenant organizations.

Rental Protection Agency
Advises both landlords and tenants on consumer issues.

U.S. Department of Housing & Urban Development (HUD)
Resources include lists of no-cost foreclosure-issue counselors and public housing agencies by state.

Link of this resource:

Message # 37
Brain and Spinal Cord Injuries
Posted by: Anthony Trocchia

Link of this resource:

Message # 36
Wheelchair stuff +
Posted by: Anthony Trocchia

Link of this resource:

Message # 33
Careers & Employment
Posted by: Anthony Trocchia

Division on Career Development & Transition

Hire Disability Solutions

Job Accommodation Network

National Business & Disability Council

U.S. Department of Labor's Office of Disability Employment Policy

Link of this resource:

Message # 32
Families & Parenting
Posted by: Anthony Trocchia

Family Voices

Parents with Disabilities Online

Sibling Support Project

Through the Looking Glass

Family Resource Center on Disabilities

MUMS National Parent-to-Parent Network

National Dissemination Center for Children with Disabilities

Protected Tomorrows Network

Support for Families of Children with Disabilities

Technical Assistance Alliance for Parent Centers

The Cord Blood Bank

Link of this resource:

Message # 31
Travel Sites
Posted by: Anthony Trocchia

Accessible Journeys

Disabled Travelers

Emerging Horizons (magazine)

Open Doors

Society for Accessible Travel & Hospitality

Accessible Portugal

Care Vacations

Wheelchair-Friendly Travel

Ability Trip

Flying Wheels Travel/Tours

Search Beyond Adventures

Accessible Campgrounds and RV Parks

Access Travel Center

When We Travel

Planet Mobility

Travel for Disabled People

Disabled Travel Network

U.S. National Park Service - Listing of all NPS accessible camps, trails, visitor centers, and vistas

Accessible Resources for the Disabled

Explore Rhode Island

Link of this resource:

Message # 30
Health/Patient Advocates
Posted by: Anthony Trocchia

You don't always have to pay for a patient advocate. Hospitals and non-profit groups also provide them.

Help for those with chronic or life-threatening illnesses:

For those who need marrow or blood-cell transplants:

Medical Billing Advocates of America

Link of this resource:

Message # 29
Low Vision Resources
Posted by: Anthony Trocchia

AWARE, a national not-for-profit organization, announces the launching of its new and easy to use web site designed to enhance quality of life and independence for those with vision loss, their families, and friends. The site provides free self-help rehabilitation "Question and Answer" information on all aspects of daily living, plus links to a wide range of services and resources.

International Academy of Low Vision Specialists

National Eye Institute

American Academy of Ophthalmology

American Optometric Association

Prevent Blindness America

American Foundation for the Blind

Lighthouse International

DIALOGUE magazine

National Library Service for the Blind and Physically Handicapped

Link of this resource:

Message # 28
Online Medicare Network
Posted by: Anthony Trocchia

The Medicare Rights Center, a national consumer service group, has launched an online network that encourages people with Medicare and their advocates to discuss problems with obtaining affordable health care.

The center's priorities include fighting for easy access to affordable prescription drugs, advocating for disabled people to get needed care through Medicare, and advancing equal coverage of mental health services.

Link of this resource:

Message # 27
National Medicaid Resources
Posted by: Anthony Trocchia

Center for the Study and Advancement of Disability Policy (CSADP)

Centers for Medicare and Medicaid Service

National Academy for State Health Policy

National Conference of State Legislatures

Neighborhood Legal Services

Link of this resource:

Message # 26
Posted by: Anthony Trocchia

Caregiving Online

Caregiver Survival Resources

National Family Caregivers Association

Third Age Guide to Health - Caregiving

Family Caregiver Alliance

Family Caregiving 101

Access to Respite Care and Help

Well Spouse Foundation

Share the Care Network

Caregiver Resource Network

Caregivers' Resources

National Alliance for Caregiving

Strength For Caring has a Senior Living Directory which includes reviews of facilities at

Additional resources:

Link of this resource:

Message # 25
MTA Bus Company
Posted by: Anthony Trocchia

The seven private bus companies previously in operation in New York City have been consolidated into what is now known as MTA Bus Company. To make a complaint, you need the date, time, route number, and bus number. Written complaints must be signed.

MTA Bus Company
347 Madison Avenue
New York, NY 10017

Telephone number for complaints: 718/445-3100

Link of this resource:

Message # 24
Alternative Medicine
Posted by: Anthony Trocchia

National Center for Complementary and Alternate Medicine

Link of this resource:

Message # 23
Loss & Grief
Posted by: Anthony Trocchia

Alive Alone

Bereaved Parents of the USA

Center for Loss and Renewal

Center for Loss in Multiple Birth

Centering Corporation

Compassionate Friends

First Candle

Grief Haven


Grief Loss Recovery

Grief Tool Box

Grieving Child Organization

Miss Foundation

National Center for Grieving Children and Families

Open to Hope

Parents of Murdered Children

Shiva Foundation

Survivors of Suicide

Tragedy Assistance Program for Survivors

Twinless Twins

Link of this resource:

Message # 21
Hope * Information * Support
Posted by: Anthony Trocchia

The Centering Corporation is a non-profit organization dedicated to providing education and resources for the bereaved.

Link of this resource:

Message # 20
Online Civil Rights Campaign
Posted by: Anthony Trocchia

The National Campaign to Restore Civil Rights is housed at NY Lawyers for the Public Interest. It is a nationwide collaboration of organizations and individuals working together to address the rollback of civil rights in the federal courts. The organization links individuals and groups working on a variety of issues, including women's rights, racial justice, disability rights, environmental justice, language rights, and workers' rights. The Campaign focuses on public education and outreach, finding ways to spread the word about the impact of recent court rulings on local communities, as well as the erosion of civil rights nationally. The site is divided into four main areas: Issues Area, Speakers Bureau, Resources Area, and Video Area.

Link of this resource:

Message # 19
Agency Spotlight
Posted by: Anthony Trocchia

Blindline Call Center
(VISIONS Services for the Blind and Visually Impaired)
1-888-625-1616, extension 710

The Blindline Call Center consists of a comprehensive database of products and programs such as rehabilitation/social services, accessible businesses, and entertainment/cultural institutions. To accommodate the widest range of user preferences, Blindline includes both a traditional toll-free call center and an internet search site fully accessible to blind and visually impaired computer users with screen readers and magnification systems.

Link of this resource:

Message # 18
Posted by: Anthony Trocchia

LawHelp is an online resource that provides low-income New Yorkers with referrals to free legal services, information about their legal rights, links to social service and government agencies, and information about the court system. It is completely free to access and all listed resources are free. The website is easy to use and has the most comprehensive and up-to-date database of New York legal service providers available in the state.

Link of this resource:

Message # 17
Agency Spotlight
Posted by: Anthony Trocchia

Resources for Children with Special Needs, Inc.
116 East 16th Street, Fifth Floor
New York, NY 10003
Telephone number: 212-677-4650

RCSN is an independent, non-profit citywide source of help for NYC parents and caregivers of children with disabilities or special needs, ages birth to 21, and the professionals who work with them. RCSN provides referrals by phone or by appointment at their office. For office appointments, there is a sliding scale fee. This covers all help provided around a specific issue. There is no fee for help provided on the telephone.

Link of this resource:

Message # 16
Prescription Assistance
Posted by: Anthony Trocchia

The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. Its mission is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. Through this program, PPA offers a single point of access to more than 275 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies.

Also visit:

Link of this resource:

Message # 15
New Jersey Disability Resources
Posted by: Anthony Trocchia


Call 211 within NJ

Call 1-800-HELP-555 outside NJ

Link of this resource:

Message # 14
College is for Everyone
Posted by: Anthony Trocchia

Aimed at youth with intellectual disabilities who want to go to college, this site provides information and links for potential students, parents and professionals.

Link of this resource:

Message # 13
Dental Care
Posted by: Anthony Trocchia

If you have a disability and are looking for low-cost or no cost dental care, contact this nationwide program of participating dentists.

Link of this resource:

Message # 12
Suicide Prevention
Posted by: Anthony Trocchia

The purpose of this site is to provide immediate assistance to individuals in suicidal crisis by connecting them to the nearest available suicide prevention and mental health service provider through a toll-free phone number, 1-800-273-8255. It is the only national suicide prevention and intervention resource funded by the federal government.

Link of this resource:

Message # 11
Drug Price Comparison Website
Posted by: Anthony Trocchia

An interactive website allows consumers to compare retail prices for 25 commonly prescribed medications at specific New York pharmacies.

Visit for prescription drug price comparison by info by surveyed stores, address and price. The site also offers a pharmacy locator service to search for local pharmacies by zip code; helpful info about how to lower costs for prescription drugs; links to public and private programs that offer discounted or free medications and information about the proper use of prescription drugs.

Link of this resource:

Message # 10
Learn More About HIV/AIDS
Posted by: Anthony Trocchia

Africa Action
Aniz, Inc.
The Body
Community HIV/AIDS Mobilization Project
Gay Men's Health Crisis
Global AIDS Alliance
HIV Law Project
Physicians for Human Rights
SisterLove, Inc.

Link of this resource:

Message # 8
Long Term Care Ombudsman Program
Posted by: Anthony Trocchia

The Long Term Care Ombudsman Program is a federal advocacy program dedicated to protecting people living in nursing and adult care facilities. The Ombudsman Program is sponsored in NYC by the NY Foundation for Senior Citizens. The core of the program is its corps of specially-trained and certified citizen volunteer ombudsmen who visit facilities and meet with residents to resolve their issues/concerns.

The Ombudsman Program is now recruiting volunteers with good observation, communication, and reporting skills. If accepted, volunteers receive 36 hours of training. Upon successful completion of the course, volunteers will be assigned to a nursing or adult care facility close to their residence and are required to contribute 4 hours per week. Transportation reimbursement is available.

If interested in learning more about the program or volunteering, call

Link of this resource:

Message # 7
Posted by: Anthony Trocchia


Alcohol Abuse Crisis Center

Children of Alcoholics

Drug Abuse Action Helpline


Alcoholics Anonymous


Narcotics Anonymous

Smart Recovery (12-step alternative)

Link of this resource:

Message # 6
Posted by: Anthony Trocchia

Resources and shelters are only a phone call away--via the National Domestic Violence Hotline at 1-800-799-SAFE (ext. 7233), or, for LGBT people, the National Coalition of Anti-Violence Programs at

Link of this resource:

Message # 5
Guide to HIV Care in New York State
Posted by: Anthony Trocchia

The New York State Department of Health AIDS Institute announces the publication of A Consumer's Guide to Quality of HIV Care in New York State. Quality scores for 130 clinics in New York State are available at the AIDS Institute website:

Link of this resource:

Message # 4
Anti-Terrorism Hotline
Posted by: Anthony Trocchia

To report a threat or act of terrorism, call the New York State Terrorism Tips Hotline at 1-866-SAFE-NYS (1-866-723-3697).

Link of this resource:

Message # 3
Posted by: Anthony Trocchia

The Benjamin Cardozo School of Law of Yeshiva University has a legal clinic designed to assist people with disabilities and the elderly. Cardozo Bet Tzedek Legal Services covers several areas of law, including Medicaid and Medicare advocacy, disability rights, Social Security benefits, estate planning for people with modest means, and tenants' rights. For more information, call 212-790-0240.

Link of this resource:

Message # 2
Attorney General's Health Care Bureau
Posted by: Anthony Trocchia

The New York State Attorney General's Health Care Bureau protects and advocates for the rights of all health care consumers statewide. The Bureau operates a Health Care Helpline that assists thousands of New Yorkers with individual problems; investigates and takes law enforcement actions to address systemic problems in the operation of the health care system; and proposes legislation to enhance health care quality and availability in New York State.

Link of this resource:

Message # 1
Aviation Toll-Free Hotline Cards Available
Posted by: Anthony Trocchia

The Office of the Assistant General Counsel for Aviation Enforcement and Proceedings has established a toll-free telephone number that disabled consumers who experience air travel problems may use to obtain information and assistance. The hotline is staffed from 7 AM to 11 PM in Washington, D.C. seven days a week. The Department has produced business cards with the toll-free hotline number which can be easily carried by air travelers. If you are interested in receiving copies of the hotline card to distribute to friends and colleagues, contact the hotline at
1-800-778-4838 or
TTY: 1-800-455-9880.

Link of this resource:

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